Hello everyone..was just recently told I have MALS and would need surgery. My pcp admits she doesn't know much about this condition but is doing the research and trying to find the right surgeon for me. The first two were general surgeons and they didn't want to touch me do to my previous surgery and my complicated antamony. I have heterotaxy syndrome with polysplenia...basically I have a lot of things not in the right places. I have suffered for several years with severe pain with eating nausea diarrhea/ constipation..I've lost two jobs..and I just want to have my life back. I stood up and asked my PCP to send me to the Mayo clinic or Dr Hsu in Connecticut since we found out there are no good vascular surgeons in Missouri. Does anyone know how long it takes to get an appointment with the Mayo clinic. My Dr sent my referral off on April 1st two days later I got a Mayo clinic patient number but still no appointment. Just wondering if I should have my Dr refer me to Dr Hsu too?