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Ready for the end.

Epilepsy & Seizures | Last Active: 14 hours ago | Replies (26)

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@tonyde

I've been where you are, I became so despondent that it now scares me. Then, I realized the only person that could improve the quality of my life was me. My seizures are incidents, not an ongoing illness. Seizures come and go, it's the space between seizures that became my focus. A small seizure was a yay!, I beat that one.

Not being able to drive became a gift, someone else had to drive while I rested, sucks to be them. I wasn't allowed to cook for several years. Good, let someone else do the work. Unable to be alone turned into I'll always have company. I could always go into another room to be alone.

Seizures exist in the brain, it's a head game, winning the game is how you play the game. WIN!

EXCITING NEWS - I had an appointment with a neurologist at USF earlier today. There are more ways to control seizures than medication and brain surgery. There's a device that is implanted in your chest that sends impulses to a nerve to abort seizures. There's another that's inserted into your skull, it sends impulses to your brain but doesn't touch your brain.

I don't know much about the devices, it was part of my new patient evaluation. Lots of changes were made to my medication and a 3 to 5 day EEG was scheduled.

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Replies to "I've been where you are, I became so despondent that it now scares me. Then, I..."

Hi @tonyde, Good Morning
I am happy to hear you got this exciting news!
I am adding a link with information on different devices for epilepsy treatment:
https://www.epilepsy.com/treatment/devices
Happy weekend!
Chris (@santosha)

Love your attitude, especially your thoughts on driving. I feel the same way. Although, since I don't have to drive, I don't pay attention to the direction my driver is taking. So, when I am asked by someone who is driving me to give them directions on how to get me to a given location, I'm as useless as an ashtray on a motorcycle. No matter, I'm fine without driving.