This is a bit long but I have tried to make is as short as I can. I did post a comment probably at the start of the year. That was probably book long as well.
Having been told I had stage 3 CKD In January, I downloaded onto Kindle several books on the subject. Having recently recovered from PMR I had a few books on autoimmune diseases too. Due to my doctors office's inability to attract a second doctor after the only additional doctor left, I have had to rely on Nurse Practitioners for health care. After 3 years, another doctor was hired and she seems to be one of the good ones, about time. At the follow-up office visit, she told me I was actually stage 4. Up to now no one told me anything about the state of my renal health so the news was a little shocking. And as my test results are almost the same this annual physical as the last then I think they should have said something. Now I know, I can do something about it and by the follow up office visit the numbers were a little improved, even though I only had 3 months since my last visit to make any changes
My greatest problem is reconciling the PMR diet restrictions and the CKD diet. I could only find one dietician in my area but even so 50 miles away. I haven't decided to contact this person yet as one of the books I have has been a lot of help arranging meals to satisfy both conditions.
However, there are several questions I haven't had answers to. What is the daily limit of Potassium and Phosphorus? Based on recipes in the self help books they list the individual numbers for both but nothing about daily limits. I have compiled several recipes that fit both dietary requirements and totaled the ingredients by servings. But I feel like I am wandering around in the dark.
My second problem, I’m 80. And the third, my health care is Medicare/Affordable Health Care. I am trying to come up with a plan of what to do if the program is cancelled. Life just gets better and better.
Many thanks for letting me bend your ear.
Hello,
I know your fear I have been there. I have been in dialysis since October 2024. I had the same questions you have. Yes you need a dietitian. Even if it is an online meeting. Your phosphorus can be controlled with medication. What you need is blood work to say if it is needed.
I got neither till October. And my GFR was 14 by then so you definitely have time. I am 72.