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Colleen Young, Connect Director avatar

Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: Sep 27 7:19am | Replies (994)

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Hi Colleen,

This is an update. Finished radiation 5 weeks ago. Unfortunately I acquired a blood infection shortly after. Spent a full week in the hospital identifying the infection (bacteria). Eventually getting a Picc line with 2 antibiotics. Got one clear/ clean blood test resulting in being released to home health care, antibiotics 24hours/day for a month. The urgency had 2 reasons, getting ready for a June 17 surgery and stopping this infection from spreading and getting worse. Weekly blood tests were taken at home with improvement showing in basic metabolic panels. Secondly, pain medications have been effective, enough to modify its use by taking Oxy (twice a day, 5 Mg.) and Tylenol (3000 mg) per 24 hours. I've had PT and OT during this time, to get me stronger prior to surgery. I hope to have more after surgery. My pain level in my left leg has also been reduced. The numbness has now spread to my left foot (from my hip). My left leg is restricting movement and balance. My PT has really helped. I have fallen 3 more times in the past 10 days, with a walker (for a total of 12 times since Jan.). Lucky that I have not hurt myself. I'm impatient with my movements (guy thing?). Anyway I'll keep my story on this blog going after surgery.

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Replies to "Hi Colleen, This is an update. Finished radiation 5 weeks ago. Unfortunately I acquired a blood..."

Colleen, Ive recently started PT at home after 8-hour surgery for removal of sarcoma that was accesable, leaving some sarcoma behind. The result was removal of a solid form or the mass plus a 4" section of femoral nerve and muscle (psoas?). The pre surgery CT scan showed no metastases. I have only one major complication: left hip pain when maneuvering the leg in some positions. The surgeon said that it takes a long time to heal. I have no superficial feeling below my hip to my lower leg. I still have strength fpr PT exercises.