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Diagnosis Frustrated: How you were diagnosed with NETs?
Neuroendocrine Tumors (NETs) | Last Active: Jan 18 8:33am | Replies (39)Comment receiving replies
Has anyone had to have surgery that has carcinoid syndrome? I have a kidney stone that needs to be surgically removed. It is not in position to be blasted.
Replies to "Has anyone had to have surgery that has carcinoid syndrome? I have a kidney stone that..."
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My tumors (lungs) were first noted in 2016 and as goes with NETS there is little knowledge about it. I was biopsied that year, inoperable due to location in both lower lobes. While I do not have full C Syndrome and as yet have not needed injections I have had a facial surgery that did not cause any issues. There was no up tic in symptoms. Not sure if this answers your question. Now in 2025 my Oncology MD wants another biopsy. Not sure about that.