Just to keep everyone up to date: Mayo Clinic Rochester just sent me consent for MALS research in the mail. I believe it is for patients that have had surgery at Mayo. It had many quality of life questions about pre and post surgery, in addition to symptoms. I hope this gives you all hope like it did for me. The more research the better. I will keep you updated if I hear anything. Also, I will be going to a conference in Dallas, Texas this week called Healthevoices to learn how to better advocate for all of us. I may not be on as much during that time Wed-Sun this week. Please know I will be thinking of you- Healing Hugs, Kari