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Hi SP, interesting that you are in the UK too. I live in London. I am growing Mac and Abscessus at the moment. I was diagnosed back in Dec 2022 had 14 months of hell on the big 3 but stuck it out mainly because I knew no different! Have underlying bronchiectasis - my lungs are what I would describe a pebbledashed! I cough most days, get breathless, stay active, still work but I am very thin. I find it all so frustrating going from an energetic person to someone who is in bed by 8pm and asleep at 10pm. The fatigue is awful but I keep going. Watch and wait is the option at the moment after a year being clear I am back to square one. It is annoying that the treatment is the same as what people with TB are given - at least they recover. The wait for appointments is not good and so many have been cancelled. My kidneys were damaged from rifanpacin. Anyway I am going to battle on and keep going with airway clearance. I have to wait until July to be checked that I can tolerate a saline nebuliser! Wishing you well.

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Replies to "Hi SP, interesting that you are in the UK too. I live in London. I am..."

Sounds like you’ve been through a lot to try to treat and beat this but good on you for persevering. While not the main take away from your post but what did stand out for me was your description of pebbledashed- such a great word, I will have to incorporate it when I describe this journey with my wonky longs. All the best to you, good luck at your upcoming appointment.