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Hi Sue, I appreciate your knowledge and words of advice. It brings comfort hearing your point of view and how you’ve managed your care. Did I understand that you were able to get off the antibiotics and manage your treatment with nebulizing the 7% saline only? I’m hopeful that I will see good results with nebulizing without the antibiotics for awhile.

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Replies to "Hi Sue, I appreciate your knowledge and words of advice. It brings comfort hearing your point..."

Yes, I was taking the antibiotics 7 days a week, and still had positive cultures even though my lungs looked better on CT. So for the past 5 plus years I have managed with saline, airway clearance and Symbicort. I add levalbuterol and budesonide if I have an exacerbation. My most effective airway clearance is from vigorous walking, yoga or yard work followed by huff coughing and sometimes Aerobika.

I had a visit with my pulmonologists this week and they said it must be effective since there are no mucus plugs or infection signs in my most recent CT. Now we are working on getting an effective sputum culture to confirm still no infection hiding in my lungs.