← Return to 4 Weeks on Orgovyx and PSA Undectable

Discussion

4 Weeks on Orgovyx and PSA Undectable

Prostate Cancer | Last Active: Jun 1 7:10am | Replies (6)

Comment receiving replies
@jeffmarc

Orgovyx Has hidden your active cancer behind a drug that stops it from growing and may shrink it. The thing is after RARP if your PSA is above .2 they want to do salvage radiation.

They radiate the prostate bed because that is the most likely Place for the cancer to spread at first. Since your PSMA Pet scan showed nothing The prostate bed is the most likely location for metastasis.

Some doctors feel you should just wait until metastasis show up and then blast them with SBRT. Salvage radiation does work quite well for Many people, They gave me an additional 2 1/2 years of undetectable prostate cancer.

One thing to realize is that the PSMA PET scan cannot see metastasis that are 2.7mm Or smaller, And in some cases they cannot detect them up to 5 mm. So you could have metastasis anywhere, but they are not big enough to be seen yet.

I’m just giving you a lot of different things to think about. Don’t be fooled by the fact that orgovyx is why your PSA is down. You have an active metastasis that needs to be treated. If you don’t do that when you stop Orgovyx Your PSA will rise quickly.

Jump to this post


Replies to "Orgovyx Has hidden your active cancer behind a drug that stops it from growing and may..."

Thanks for the thoughtful and balanced reply. Everything you mention makes complete sense and is consistent with what I’ve heard otherwise. I’m assumiming my team will recommend continuing with radiation treatments and the 6 months of hormone therapy.

Not excited about either, but in the bigger scheme of things, it’s a pretty small inconvenience. I recovered from the surgery quickly (was walking 6 miles within a week and no incontinence) and, other than hot flashes, I’ve had no significant side effects from the ADT. Pretty much am doing everything I was before other than sexual function is mostly on hiatus between the RALP (full nerve sparing) and ADT. Then again I turn 70 this year so probably should temper my expectations!

I will see what the team says next week, but I’m prepared to stay the course. Thanks again for your thoughts.