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Any one with Neuroendocrine tumors getting the shot once a month?

Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (120)
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@sadragliz

Seeing Oncologist on Tuesday CT showed a 10mm at my thyroid, First lung tumor removed (NET) Now this, did not realize this would be an ongoing illness. Need to adjust my mentality with this. I may also need to find a NET team in my area. Do not have one now. I am in Illinois. Staying positive!!

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Replies to "Seeing Oncologist on Tuesday CT showed a 10mm at my thyroid, First lung tumor removed (NET)..."
Teresa, Volunteer Mentor | @hopeful33250 | 3 days ago

Hello @sadragliz,

I can understand your feelings when you say, "...did not realize this would be an ongoing illness." NETs, as well as other cancers, tend to be chronic illnesses. We all wish it were a one-time event, but unfortunately, that is not the case for most of us.

Now your question about a NET team in your area. If the Mayo Clinic in Rochester, Minnesota, is a comfortable drive for you, I recommend that you have at least one consultation with a Mayo NET specialist. This consultation might help set the course of your future treatment and give you a better understanding of this new occurrence.

If an appointment at Mayo is not possible, here is a list of NET specialists by state and by country. https://www.carcinoid.org/for-patients/treatment/find-a-doctor/. As I glanced at the list for Illinois, I saw several in the Chicago area.

Yes, please stay positive. Our attitude is the only thing we can control. Has the thyroid tumor been determined to be NETs?

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fraaseo | @fraaseo | 3 days ago

Where at in IL? I also live in IL & would be happy to share my NETS Specialist with you.

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amygirl | @amygirl | 3 days ago

Depending where in Illinois. I go to Carbone Cancer Center at U.W. Madison,Wi.

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