Hi @jpol and welcome to Connect. Those symptoms must be awful. You may have noticed I moved your post to this existing discussion on MALS so that you can connect with others who have experience with this and os that you can learn what they have had to say.

I wanted to introduce you to fellow Connect members @kariulrich and @jbdforisu as they have experience with this and you may be able to provide support for eachother.

Back to you @jpol have you mentioned to your doctor that you think it is MALS as opposed to vasculitis?