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TYMLOS FEEDBACK

Osteoporosis & Bone Health | Last Active: 12 hours ago | Replies (43)

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@seh801

I threw it away after 30 days - didn't want to risk it since that's what they said to do. I found the Tymlos patient support helpful when I had questions. With my insurance I had to use Optum Specialty Pharmacy and they also had pharmacists available for questions. When I 1st started Tymlos I had right upper quadrant abdominal discomfort, and called several times. We never figured out if it was from the Tymlos or from adding Pilates to my weekly workout schedule at the same time & not breathing correctly! I reported it to Tymlos and talked with both my osteo doctor and GI doctor about it. Upper abdominal pain is a rare side effect listed, but it was mild and resolved.

There is SO much great info about taking Tymlos and I didn't find this forum until a few months ago - wish I'd found it when I was first diagnosed! Lots of different experiences. Some people take it in the morning, some at night, which is what worked for me. Some people have terrible side effects and some have very few. Best of luck to you (and everyone else starting it)!

Adding: Tymlos also sent me a travel container for the pen and I think 5 needles - it was super helpful to have! There was a spot for alcohol pads too.

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Replies to "I threw it away after 30 days - didn't want to risk it since that's what..."

I have read on here from others and my endocrinologist also said, if kept in refrigerator it will last longer. That helps saving when some of us are titrating. Doesn’t make sense day 30 is good but not next day. Look on other posts here about this.

Many thanks. I appreciate your input. Praying for the best outcome.