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Neuropathy: Numbness only, no pain
Neuropathy | Last Active: 16 hours ago | Replies (528)Comment receiving replies
Hello,
I was diagnosed with idiopathic sfn 2 years ago. I will be 50 in July. I also do not have pain, except an occasional cramp or quick sharp pain. I will also get muscle twitches. But the numbness has progressed. We have tried everything to find a cause so it can be stopped, but nothing is showing up. It has caused low blood pressure, low glucose and low body temperature. Its not constant but seems to flare up. I would be lying if I said I wasn't scared especially when they said there is nothing that can be done. I didn't expect the progression this year. I have had numbness in my feet calves, hands, arms, and face. It also come goes, except this year my right small toes are more constantly numb. And recently it feels like im stepping on something while walking. I really appreciate hearing this information. Im hoping to find out more. To have ideas of things that might help.
Replies to "Hello, I was diagnosed with idiopathic sfn 2 years ago. I will be 50 in July...."
I understand why the professionals don't seem to dig into possibilities for causes as there doesn't seem to be any specific treatment depending on cause. But, one possibility that might have a "fix" is lyme disease. If you know you've had any previous tick bites (even years ago!) you might want to ask your PCP for a test.
Also, those flare ups are lightly related to the weather! I feel like a walking barometer most of the time!
I have neuropathy numbness with no pain& had problems with high blood pressure. Working out exercising and getting my heart rate up has cured my high blood pressure from the 150s. This AM 118 over 60.
Hello,
This is my first post.
A few years ago(2022) I was diagnosed with idiopathic sfn. I have had episodes(I think since 2017). My feet hurt for a year or so, I ignored it and the podiatrist sent me to the neurologist. I passed all my tests. It went from pain to numbness in both my feet. I got used to it. In the past month it has moved from my feet up to my thighs. I am not able to feel pain in my muscles. Stretching, lifting, etc... there is tiredness, pressure, and no pain or much feeling. The numbness is making it slightly hard to walk only because my legs just don't feel right. How long did it take to progress? Are you able to feel stretching etc? I am also looking for any ideas as the neurologist has started all the tests again. " I would be lying if I said I wasn't scared " rang true. I haven't told my family, only my wife who I don't think realizes the seriousness? I'll post more in the my story section. I am also turning 50.
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Hello @janeenelizabeth, Welcome to Connect. You are not alone being after hearing your doctors say that nothing can be done. I also have idiopathic small fiber peripheral neuropathy with just numbness and some tingling but no pain. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. My story is similar to yours and is the reason I came to Connect looking for some answers when my doctors really didn't have any treatments or suggestions to help with the numbness.
I think you already have a great start just by coming to Connect and asking questions and looking for information that might help. The best thing we can do to be a better advocate for ourselves is to learn as much as we can about our condition and what treatments may be available to provide some relief. If you haven't already seen these sites, here are some of my favorites for learning more about neuropathy:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/
And my favorite search engine for finding the latest medical research is Google Scholar - https://scholar.google.com/scholar?hl=en&as_sdt=0%2C24&as_ylo=2025&q=neuropathy+numbness+treatment&btnG=
Have you done any research on complementary or alternative therapies for neuropathy?