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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: 5 hours ago | Replies (1229)
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@kariulrich

Thinking of you @davemazon, not everyone looses weight with MALS. Your PCP sounds like he is on top of things as there is a concern for ischemia. Have they considered doing a cath angiogram? At this point it maybe something to consider... there is something called IVUS... it is an ultrasound inside the arteries and they can take pressure readings. You may want to look into that, I believe there is even better technology than IVUS now. Ask for a consult with interventional radiology.

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Replies to "Thinking of you @davemazon, not everyone looses weight with MALS. Your PCP sounds like he is..."
davemazon | @davemazon | Mar 3, 2019

Thanks @kariulrich   A MALS MRI protocol was developed and implemented specifically due to my case and for use with future potential ones, as nothing of the like existed within our organization prior.  The MRI was on Wednesday morning of this past week and lasted around two hours. Friday evening, the Vascular surgeon discussed results with me.  This second round of imaging reconfirmed initial CT indicating celiac compression. I was discharged Saturday midmorning. Tomorrow I plan to research other institutions with physicians specializing in our shared disease state and go from there.  My symptoms have become progressively more acute over course of the past several months. My hope is to receive treatment by a specialist Team soon.

Thanks for your time and support!

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