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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: Oct 29 2:54pm | Replies (1225)

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@davemazon

Hi, All. I've been diagnosed with severe narrowing/stenosis of the celiac artery. Today the Thoracic physician said he is still not sure it is MALS because I'm not losing weight. I'm actually in the hospital now, admitted last night from ED. I was sent to ED by PCP, who was concerned my pain could mean ischemia/organ damage given severity and duration I've been in this state. I have many of the symptoms mentioned in this forum - severe abdominal pain (both sides but predominantly left, under/around ribs and radiating to back) nausea lasting for hours and days, shortness of breath, weakness, chest pain, headaches. A CT from an ED visit in September of 2018 revealed stenosis and poststenotic dialation. What a journey to get to this point. Its been an uphill battle, really. I've had to be my own advocate - reading, researching, insisting on being seen and being taken seriously when dismissed and pushing for more testing when something was ruled out. Most important is to maintain hope. I really want to consult another physician/Team. Can anyone give some recommendations? I believe UPMC is the next closest health system to me. Thanks!

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Replies to "Hi, All. I've been diagnosed with severe narrowing/stenosis of the celiac artery. Today the Thoracic physician..."

Thinking of you @davemazon, not everyone looses weight with MALS. Your PCP sounds like he is on top of things as there is a concern for ischemia. Have they considered doing a cath angiogram? At this point it maybe something to consider... there is something called IVUS... it is an ultrasound inside the arteries and they can take pressure readings. You may want to look into that, I believe there is even better technology than IVUS now. Ask for a consult with interventional radiology.