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Idiopathic Polyneuropathy: Do you have fatigue?

Neuropathy | Last Active: 18 hours ago | Replies (20)

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@db72

Mine is classified as idiopathic because they did every test in the book including nerve conduction studies, autoimmune studies. Monoclonal antibodies, brain scans, vitamin/iron, the whole nine yards. I’ve had Hashimoto’s for decades but it’s well managed. I have severe large fiber axonal damage. I believe my nerve damage began 40 years ago when I was struck a severe case of Epstein Bar Virus. I never recovered and it turned into ME/CFS (Chronic Fatigue Syndrome). I’ve been disabled my whole adult life. The nerve damage began literally overnight when I first got sick. But the numbness and progression started about 20 yrs ago. I’m not well enough to go out for physical therapy but there are balance exercises online I do when I’m up to it.

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Replies to "Mine is classified as idiopathic because they did every test in the book including nerve conduction..."

@db72
I had mono as a teen and wonder if EBV is behind my idiopathic small fiber neuropathy.
1. https://www.ajnr.org/content/early/2023/07/27/ajnr.A7945
2. https://www.acibademhealthpoint.com/epstein-barr-virus-and-nerve-damage-risks/