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Microscopic Colitis

Digestive Health | Last Active: 3 days ago | Replies (66)

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@pichulita

Hello everyone,
Diagnosed w/MC last July, health went downhill fast, down to 85 lbs and ended up w/PTSD...what a nightmare! I have been on 30mg Mirtazapine and 5mg Lexapro since January and that pulled me out of the PTSD. Mentally and emotionally am doing well, but had a flare a few weeks ago....trying to get it under control. I stopped all natural supplements (I was on a LOT) which helped, but stools still very soft w/occasional diarrhea. I am just taking D3, Magnesium Glycinate and Brain MD. Am sticking to a BRAT diet w/roasted chicken and well cooked carrots, squash, spinach, sweet potato and white rice. My gut likes these.

Been on Creon since last August and I tried weaning off of it slowly a few days ago. My gut said, "No!" I have an order for a fecal elastane test but I'm afraid to stop the Creon for 2 full days before the test for fear of dealing with a lot of diarrhea again. Has anyone experienced this?

My GI ordered Budesonide last summer but I never took it so it's still in my bathroom cabinet. I have read so many people's accounts of recovering quickly w/Budesonide but that the D returned once they stopped. Is this the general concensus here?

Thank yo for any comments, suggestions or opinions.

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Replies to "Hello everyone, Diagnosed w/MC last July, health went downhill fast, down to 85 lbs and ended..."

I'm curious as to why you've been asked to discontinue Creon before your fecal elastase test? My understanding is that Creon does not affect the outcome of this test (according to my GI.); however, diarrhea will definitely affect the result giving a lower level than what you would get with a better-formed stool sample. Also, please take the Budesonide! Not everyone relapses after coming off Budesonide, and many of us stay on a maintenance dose for years. Unlike other steroids, Budesonide acts mainly on the colon and does not have all the side effects of other steroids. It's worth taking, especially since you have had such a difficult time with managing your MC.