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Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: Oct 29 2:54pm | Replies (1225)Comment receiving replies
Hi @kariulrich, I was just diagnosed with MALS and I am currently being tested to see if I will need surgery. I am being told I will go to California if it is needed. I also have POTS so flying is tough. I have SIBO and high histamine reactions as well so I have to be real careful with what I eat. I am quite apprehensive about surgery. I wondered if you had the laparoscopic procedure as well? Is there a reason why either or is preferred? I have also heard that some end up needed surgery twice. Was this the case for you and if so, can you share why? Finally, I thought my GI doctor stated there is a 50/50 survival, but I think she meant a 50/50 success rate. I will ask her when I return to see her. I just wondered about anything you could advise to ease my worry. I appreciate the sharing.
Replies to "Hi @kariulrich, I was just diagnosed with MALS and I am currently being tested to see..."
@bl3ss3d Welcome to our group. I also have POTS and understand why you would not want to fly for a medical procedure! I had an open surgery, I also have a vascular disease and with my additional diagnosis it was better for me to have open. I have heard very good things about both procedures, and I feel the biggest question is to find out how familiar your surgeon is with MALS, what are the success rates for that facility. I believe she meant 50/50 success rate...but it really depends on the person. How long have they had MALS, adult versus pediatric... have you been on pain medication and how long, have you had a successful celiac block, those are some pieces of the puzzle that help guide the surgeon to determine if you are a good surgical candidate. So happy you found us, we are a small group but appear to be growing rapidly, which only shows you we may not be as rare a some think.
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Hello,
I have recently been diagnosed with MALS, and my doctor mentioned that many times it comes along with another diagnosis. Does anyone have any experience with this? Or just have MALS without another diagnosis?