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High Ferritin Levels: How can I lower my levels?
Heart & Blood Health | Last Active: Jan 7 7:39pm | Replies (32)Comment receiving replies
Hello @earl1959, I moved your post and to this existing discussion that you may find helpful to connect with others along with @kayabbott, like @frank0508 @lamorderd @alive, @togram and several others who have had high ferritin levels and for useful tips.
"High Ferritin Levels: How can I lower my levels?"
- https://connect.mayoclinic.org/discussion/high-ferritin-levels/
@earl1959, when it was discovered that your wife had high levels of ferritin, did her provider have any pointers or concerns with the levels?
Replies to "Hello @earl1959, I moved your post and to this existing discussion that you may find helpful..."
@JustinMcClanahan I am also glad I found this dialogue on high ferratin. I run at 1,200 to 1,000. Was at 1,600 while in dialysis 3 and 1/2 yrs. I was high ferratin even before dialysis. I received my kidney transplant w Mayo Clinic AZ 7/25/23. My ferratin runs at 1,000. I had my 1st pheb pull of 400 mL (was to be 500 mL but very slow veins/ hard stick) Pheb. pulls w UCSF are to be monthly. With my kidney transplant I didn't like that it dropped my Hemoglobin 2 pts from 14.9 feeling like gold the moment w transplant. I have put pheb pulls on pause bc I don’t like the hemoglobin drop on my kidney transplant. They tested way back and it's not generic. I got a second opinion at least liver dr brought up maybe something is causing the inflammation? MRI showed severe iron overload on speen, and mild on abdm.
Is a pheb pulls monthly the only way to deplete the ferratin? If I didn't have. a kidney transplant I wouldn't be so concerned w hemoglobin dropping 2-3 pts instantly from 14.9.
Is pheb pulls 500 mL for ever. I have low iron saturation and transferrin, Ferritin 1,000.
Not sure if inflammation?
I try to follow low iron and got rid of cast iron skillet. How can one address if inflammation cause. Should I make appt w Mayo AZ liver and hemot dr? Bay Area is stumped why high. Their solution pull pheb which drops hemoglobin on transplant. What are other side affects of high ferratin. UCSF peninsula hemo and Stanford liver dr discuss none of this. CA 10 yr wait for kidney so they don't have much experience w transplants and high ferratin. Sorry for long post. I would like to get to cause high ferratin? inflammation? and who to see.
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Thanks for the reply.
The doctor is concerned about the levels. She has been on a treatment for over four years and the remain high. The doctor is a hematologist; I think it is first rodeo.