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Osteoporosis AND Bone Marrow Disorders
Osteoporosis & Bone Health | Last Active: May 30 1:34pm | Replies (25)Comment receiving replies
I started on Evenity for severe osteoporosis in early October, 2024. By Christmas my white blood count was only 2. In early March I was diagnosed with AML ( Acute Myeloid Leukemia). I think it's likely that the Evenity triggered the leukemia, though my endocrinologist and hematologist both pooh-pooh that notion. If Evenity affects bone marrow it seems likely to me. I am extremely drug-sensitive and was very hesitant to take Evenity but was talked into it by an endocrinologist who assured me all would be well. Needless to say, I stopped taking the Evenity and will not be taking any more osteoporosis drugs.
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I am so sorry that happened to you. I also have "crappy bone marrow" and lukopenia. I was told I have chronic anemia. I did 24 months of Forteo with no change to my blood work, which is monitored every 3 months. I have not fractured since the Forteo and actually starting another course of it now 8 years later. Maybe that could also work for you? I use Raloxifene as maintenance drug in between, also with no side effects. Depending on your bone density and fracture risk, you certainly don't want to give up as fractures are incredibly disabling. I am glad not to take Evenity from what I have read, plus my insurance would not cover it. I wish you all the best : ).