Oh sorry to hear that Debbie! It really depends on the team of doctors you see and how your personality blends with the physicians... I have gone through several doctors at Mayo, and it took me awhile to find a team that works with me and my needs. It is frustrating when you have a complex diagnosis and you have to jump through hoops to see the physicians you need, even then sometimes the gatekeepers don't allow patients to see the doctors they are requesting to see. I find that the most frustrating problem! Hopefully that problem can come to light at Mayo and they will become more willing to listen to the needs of the patients in seeing who they request to see, especially when it is a rare disease... the patient most often times knows more than the gatekeepers and it is difficult to see the experts in the field. Another problem is that the gatekeepers do not always realize that their colleagues in another department are the experts. Hope this makes sense to you.