Dr. Kendrick from Mayo in Rochester did lap MAL release over a year ago. I had total relief of symptoms for about a year. Now symptoms are starting to return, which seems common with lap surgery. Sxs are usually triggered by sitting for 1 hour or more because compression is the worst in this position. Dr. Hsu in Connecticut seems to have the best outcomes from his open surgery as evidenced by the majority of his patients who had his surgery within the last 2 years (see Facebook group “MALS Awareness”). Prior to that, some of his patients are still struggling (see Facebook “MALS Still Struggling”). Dr. West and Dr El Hayek seem to have many MALS pts who are pleased for the most part. The best advice I can give is to educate and advocate for yourself before jumping into surgery. The best resources are pts with MALS in MALS Pals, MALS Awareness, and MALS still struggling. The awareness group has the most educational resources in their files.

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