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← Return to Median Arcuate Ligament Syndrome (MALS)
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Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: 5 hours ago | Replies (1229)Comment receiving replies
Hi:
Did you ever get the surgery for your MAL? I was just diagnosed with Celiac Compression Syndrome at the Northwestern in Chicago. I had Dr. Skelly do my first imaging of my arteries in my abdominal and he said he didn’t think I had MALS now 8 years later with the same problem I was told that I most likely have Celiac Compression Syndrome. In the process of looking for the best Vascular Doctor that specializes in this problem.
Who did you go see? And did they fixed your problem? Thanks
Replies to "Hi: Did you ever get the surgery for your MAL? I was just diagnosed with Celiac..."
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Dr. Kendrick from Mayo in Rochester did lap MAL release over a year ago. I had total relief of symptoms for about a year. Now symptoms are starting to return, which seems common with lap surgery. Sxs are usually triggered by sitting for 1 hour or more because compression is the worst in this position. Dr. Hsu in Connecticut seems to have the best outcomes from his open surgery as evidenced by the majority of his patients who had his surgery within the last 2 years (see Facebook group “MALS Awareness”). Prior to that, some of his patients are still struggling (see Facebook “MALS Still Struggling”). Dr. West and Dr El Hayek seem to have many MALS pts who are pleased for the most part. The best advice I can give is to educate and advocate for yourself before jumping into surgery. The best resources are pts with MALS in MALS Pals, MALS Awareness, and MALS still struggling. The awareness group has the most educational resources in their files.