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Disability of Post/Long COVID - article

Post-COVID Recovery & COVID-19 | Last Active: May 31 5:46pm | Replies (11)

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Profile picture for diverdown1 @diverdown1

I am 54. I know you remember when HIV/AIDS happened. This is similar to that in that no one seems to know what to do, however we do not face the stigma that accompanied that due to people's sexual orientation and it being inaccurately labeled "a gay disease." When I think back I am disgusted with how people were treated. There is research happening, and like you, I hope that we will get some answers.

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Replies to "I am 54. I know you remember when HIV/AIDS happened. This is similar to that in..."

Oh I do, @diverdown1 , remember AIDS all too well - too many friends and a family member died of it. Strangely, there is a stigma about Long COVID - as in "were you dumb enough to not get vaccinated or wear a mask?" It's a different stigma. The way people with AIDS were treated was made worse because of the fear "being LGBTQIA" is "catching" from reading books or being around others. That hasn't left. My fear now is of those who refuse to be vaccinated and have no sense of the hell many of us with LC are going through. I fear research and treatment stopping in too many places, and in others never having begun. I am so miserable today that they could offer me anything and I'd take it to relieve the pain.

To better!
JE