Connect
← Return to Median Arcuate Ligament Syndrome (MALS)
Discussion
Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: Oct 29 2:54pm | Replies (1225)Comment receiving replies
Hi Rachel
I know this question has been asked already, but why was there a Cancer surgeon in the team when your uncle Lou had surgery July 13 2017 at New Mexico Hospital? Had they found cancer which was treated at the same time? I ask because I know some people will not talk about cancer if they have been diagnosed with it; they will hide it from friends and even family. You said you came in late to this so you may not have all the information. I suggest you have a one on one with your uncle and ask him to tell you everything or if he will allow you, go through his medical records.
Replies to "Hi Rachel I know this question has been asked already, but why was there a Cancer..."
Connect
@ukmalsman @kariulrich
Sorry, I meant to answer your questions about the Cancer surgeon and resent tests sooner! It is painful for Lou to talk about these thingsk about because looking back there are so many "what if's" and second guessing of everything that led him to this point. I don't want other's to suffer in the same way, so I will do my best to answer them. Please just understand that he is a bit sensitive to aggressive inquires, and I don't want him to feel that I am admonishing him for his choices or circumstances. I am putting together a write up of his medical history, and I will share it here when I have more complete information.
In answer to some of your questions, here is what I know:
> "why was there a Cancer surgeon in the team when your uncle Lou had surgery July 13 2017 at New Mexico Hospital?
Lou chose to be treated in NM by a Cancer surgeon because there are no vascular surgeons in NM, and if he went out of state he would have had to pay for the surgery out of pocket, due to his insurance. I do have access to his medical records and there was no signs of cancer. I also know that it was an open procedure and not laparoscopic.
> "What type of work up has he had since Aug 2017? Any ultrasounds, angiography such at CT or MRI??"
He had a CT scan a few months ago, and it showed that the arteries were not kinked, so there was no follow up for stents.
----------
Mark @ukmalsman
I will also stop oatmeal with berries tomorrow, thank you for that advice!
I can't seem to get Fresubin Jucy in the states, but my dad found that nestle makes a similar product called Boost breeze. Looking at Fresubin Jucy, the nutritional panel looks comparable. We are getting the Resource 2.0 that has no fiber, but I think we are open to trying something different since we can't really be sure if this has been working well or not.
I wish there was more time and room for experimentation, like you did on yourself.
We just ordered a case of Breeze and expedited it. My primary focus right now is to help reduce pain, and find foods that he can eat.
-----------
Thank you all, for your continued help and support. I return to NM tomorrow afternoon with more information in hand and that feels better.
--Rachel