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Hemiplegic migraine

Headache & Migraine | Last Active: Aug 25 10:09am | Replies (45)

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Hello

I have been diagnosed with Hemiplegic migraines.

Just this month I was hospitalized 2x back to back. My attacks are very textbook symptoms. I start with a tingling in my right hand then it slowly moves up my hand to a full-fledged numbness and keeps working its way on the right side of my body. My pain in my head is a sharp pain on the right side, usually in the front and then eventually as a time progresses it’s the entire right side. I suffer with slurred speech, not being able to form sentences, extreme confusion. My entire right becomes so dead like where I can’t lift my right arm. My right leg becomes nearly impossible to walk on. My attacks last generally for an hour and can come in clusters so I can get one or two a day if I don’t receive Medication for pain. My hemiplegic migraines occurred because I was about three weeks past due my Botox injections that I’ve been doing religiously for the past seven years every three months. This was the first time that I missed the exact date for injections just due to scheduling. When admitted to the urgent care I was put through a battery of testing because doctors believed it was a stroke since it mimics stroke like symptoms. In conjunction to my Botox I also tak le the injection that I self administer once a month called emgality to release the intense pressure that my head carries. It’s truly scary having thos type of migraine because I’ve been in public when it happens, and I have to go and lay down in the car or wherever I can because I can’t function for the hour or so. My head is always in a state of pain if that makes sense. It’s just tolerable with the help of these medications. prior to botox I was getting attacks where I would not be able to get out of the bed because within 20 min or so of waking I would get hit wi my migraines making it just extremely debilitating not being able to tolerate anything lights, sounds smells pretty much everything. Life just becomes just too loud and too bright and too disturbing so I normally have to shut everything out and cover my eyes having no sound and just try and go to sleep, which is nearly impossible when you have that kind of severity of head pain.

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Replies to "Hello I have been diagnosed with Hemiplegic migraines. Just this month I was hospitalized 2x back..."

Hello @asedano81 and welcome to Mayo Connect. I appreciate you sharing your experience with Hemiplegic migraines. Your post points out just how debilitating migraines can be. It is good that you have some medications that help make this more tolerable.

How long ago did these migraines begin? Has this been over many years?