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Emergency Garage Sign

Epilepsy & Seizures | Last Active: Jun 9, 2025 | Replies (19)

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Profile picture for closetmonster93 @closetmonster93

@lisalucier In response to the conversation here regarding practical things. For me, something that I have made a priority for safety reasons is; no matter where I am or go, I always take my phone with me, I have the location on always for loved ones so they can see where I am. If I am on my own, I let someone know, where I am, and check in, whether its a message, text, someone always knows where I am. Its about safety, because you do not know sometimes, even with an aura, what can unfold. Seizures are unpredictable. I have found that when I have had the worst seizures, I am and was always alone. Whether it be in a bathtub, or wherever, without fail, it is always when I am alone. Many of these times, I was not stressed, completely relaxed, so, I have made it a point to carry a phone with me wherever. I also will check in at random times, so that someone hears from me. I have found for me, that, and having the emergency information on the phone, then if I were to have a seizure, someone can find me, and this actually has happened on multiple occasions, and saved me. I also have to say, I like the alexa idea because, I actually had an episode where I needed to call the hospital, but couldnt. This became key in reaching help, so, a plan in place is always better than no plan in place. It can always be tweaked, but, I highly recommend something. I know some people have animals, or service animals, as they are also a huge assistance in a plan. I hope this is helpful for someone. ♥️

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Replies to "@lisalucier In response to the conversation here regarding practical things. For me, something that I have..."

@closetmonster93 This is so helpful. Thank you for sharing!