Connect
← Return to Extreme Fatigue with PBC
Discussion
Liver Diseases | Last Active: Jun 3 5:34pm | Replies (13)
Comment receiving replies
Oh, no @michellesauer, it definitely sounds like connecting in the liver support group will help.
I am looping in @rosemarya who may have more information for you.
Are you comfortable continuing to work with your primary care doctor, or maybe it’s time to connect to a new liver doc?
Replies to "Oh, no @michellesauer, it definitely sounds like connecting in the liver support group will help. I..."
Also, I know that even with the medicine the disease progresses although slower. But I had one doctor who acted like the medicine was a cure. I was diagnosed 8 years ago. I’d really like to know where we are now in the progression.
Connect
I would like to connect with a new liver doctor, but one that knows enough about this disease to take it seriously. My experience has been that other than the first doctor, the others made it seem like it was no big deal and dismissed my fatigue. It was frustrating so I quit going. Now there are no doctors within 3 hours drive. So, they would have to be a good doctor worth seeing. I’m in SW Kansas. Maybe someone in Denver? But that’s 5 hours away. It would be an overnight trip. Maybe one that does virtual visits?