@techchick1025 So happy to hear you got the help you needed, especially in your complicated case. I know it is difficult when you have a diagnosis of fibromyalgia and when you see a doctor it beomes easy to blame all your symptoms on fibro. I had a similar experience in my early twenties when I had symptoms of joint pain, every doctor I saw thought my pain was due to fibromyalgia. When I lost weight I was told they suspected I had an eating disorder, they thought stress and anxiety was why blood pressure was high at a young age... but no one took the time to put all the pieces together. Finally after several decades I went to Mayo and a wonderful cardiologist took a step back and put the peices of the puzzle together, a rare vascular disease. It was too late at that point to cure my hypertension, however I will say Mayo for me has saved my life. Diagnosis in a complex patient is not easy. Once I had my diagnosis it still was not black and white... there where many more diagnoses to add. Healthcare is dynamic and so is the knowledge. I can appreciate what you have gone through, especially the travel for healthcare ..it is expensive, exhaustive and can have a negative impact on over all health. Hopefully in sharing our experiences we can help each other navigate the good and the bad aspects...especially in the MALS community. I believe strongly that more support and care is needed, especially aftercare of complex patients like us. May I ask what did your local doctors do differently that made a difference to you? For MALS, finding a GI doctor that will look at a vascular cause is one area we need more awareness...so many of us are sent to GI,which is needed but when all of our GI work up comes back normal the investigation stops. Vascular disease can be invisible... especially for those under the age of 70-80, not something commonly thought of in young and middle aged adults.