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Saluda spinal cord stimulation device
Chronic Pain | Last Active: May 30 7:52pm | Replies (12)Comment receiving replies
Dear Jacque, I believe that each physique is different. I have experienced excruciating pain in the epigastric region of my abdomen beginning in 2014. Yes, I visited Mayo for the 1st time in 2015. I tried Mayo neurologist in 7/20 but he declared mine was not nerve related. The chronology of it all is too much to list here. In April '24 a neurologist implanted a Boston spinal cord stimulator. For a year I tried everything that various Boston-reps suggested. I got zero pain reduction. In Dec. '24 the same neurologist expressed, "I take them out all the time". It is now out. I still deal with daily pain that is often overwhelming. I have attempted twice to see a stomach surgeon at Mayo even as recently as last year. They sent a letter telling me that they have so many patients that they don't have a vacancy for me. This was despite a referral from Abbott. I always thought Mayo wanted to attempt to help with complicated issues. I would appreciate an app't to Mayo if there is anyone on this link that can help. Jacque, I hope you find relief.
Replies to "Dear Jacque, I believe that each physique is different. I have experienced excruciating pain in the..."
Hello,
Your story is similar to mine! Sorry to hear. Could I PM you. I had an injury to epigastric abdomen 2010...languished in bed for 6 yrs to get small surgery to repair torn muscle.
Have severe epigastric pain now, also contacted Mayo, was declined.
Stimulator placed last Sept. all these months later I am back bedridden, it messed with my nerves so badly.
I do have some other info. Maybe of use to you...I wrote on another blog, so you may have seen another post of mine. My epigastric pain is like yours overwhelming and life altering...some days I just want to sleep thru the pain. Trying to get my Stimulator out, causes me great pain, especially battery pack. Thnk you sharing.
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Are you saying the same surgeon who recommended the SCS implanted it, and then after trying everything to get it to work, he says “I take them out all the time.”? And then he took it out?? Did it feel like the manufacturer Reps were driving the boat the whole time?
The main reason I have declined multiple suggestions to try SCS is because it always felt like Medtronic / Boston / Abbott / Nervo / etc. was in charge of the process and the doctors merely put them in and take them out.