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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: 10 hours ago | Replies (1229)

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@annief

I do not blame you for wanting to avoid the surgery. That would be my priority. From my own experience, Before the surgery I was eating enough most days to maintain my weight (that was not always the case as I mentioned in earlier posts). I could live with the smaller meals and not gaining the weight back but I decided on the surgery because I could not live with the other symptoms.

I took my time and sought several opinions which sounds like what you are doing. That was very helpful when I finally made the decision for surgery. The pain was very distracting at work and in life. Constantly thinking about what I could eat and how much to avoid any symptoms. Avoiding activity because what if the pain was bad or I would need to run to the restroom. I would have good days where I thought okay, maybe I can do this. Plus I read about people in worse shape than me. But my good days were few. I realized I really had no control. I always felt the best when my stomach and colon were completely empty. (Laxatives) 😊. But that’s not realistic long term. Looking back, most days I was just getting by.

I had no other problems like you do (migraines) so it was more cut and dry for me. Sounds like you are on the right track. Explore all your options and do not rush into anything. Glad they found it early for you.

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Replies to "I do not blame you for wanting to avoid the surgery. That would be my priority...."

I agree with annief. It comes down to how you manage the symptoms, quality of life. You also don’t have to make a decision now whether to have surgery or not. Sometimes it’s best not to rush into making a decision.
When I got my diagnosis, I had suffered for years with bouts of excruciating pain. In addition, I had chronic intestinal inflammation- unrelated. I was told the odds that surgery would help, but decided to go ahead if there was hope for improvement.
This is not a life and death decision- you can wait and see.