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TYMLOS FEEDBACK

Osteoporosis & Bone Health | Last Active: 1 day ago | Replies (37)

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@beanieone

Oh, gee, @harryboy7, I'm so sorry to hear about all of your frax! I understand your being torn about taking these evil meds, however, I figured it was meds now or a nursing home at an early age and the latter was not for me; I have too much to do!

Tymlos caused me so many issues that I was unable to complete the last 14 months of treatment. Although I had many issues - nausea that was not controlled by meds, 120+ heart rate, severe and unrelenting shoulder and chest pain that was so frightening it caused me to visit the ER twice within a few months, the feeling of walking on a broken ankle, back pain that made it difficult to walk/move, and a few other problems.

Please don't use my issues as a barometer of how Tymlos works as others have taken it and have had great success. The good news is that if Tymlos causes any adverse side effects, once you stop taking the med, it is out of your system quickly - I started to feel better within days. I had no adverse reactions to either Evenity or Reclast. As an aside, the daily Tymlos injections go pretty well once you get the hang of it.

All the best as you navigate through your story - wishing you a happy ending!

Cheers!

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Replies to "Oh, gee, @harryboy7, I'm so sorry to hear about all of your frax! I understand your..."

Thanks. Hearing about all the Side effects that you had really scares me! Sorry you had to experience that. I know everyone responds differently. Kind of a crap shoot.
I like that if you stop the Tymlos medication it leaves your body pretty quickly…at least I think. Whereas Reclast stays in the system a long time. One infusion a year sounds great, but must be a strong drug, which I don’t like. Currently I am waiting for financial help with the cost before I take Tymlos. It Is expensive!