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Replies to "I wouldn’t have more testing if it’s not recommended by your doctors. It’s possible that the..."
Neuroendocrine Tumors (NETs) | Last Active: 5 days ago | Replies (17)
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I wouldn’t have more testing if it’s not recommended by your doctors. It’s possible that the tumor can cause chest pain. Do you know if it’s an Islet cell NET or a carcinoid type tumor? Carcinoids can cause flushing, chest pain and strokes. Get the surgery and try not to worry. I am an 18 year survivor.
Replies to "I wouldn’t have more testing if it’s not recommended by your doctors. It’s possible that the..."
The only recommendation is the whipple. He said we won’t know what type until biopsy after surgery.
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What was your original diagnosis? What tests concluded this diagnosis? What treatment helped you become such a long time survivor? 18 years is awesome.