1. < Osteoporosis & Bone Health

Forteo

Posted by sue417 @sue417, May 25 9:57am

Hi
I would like to know how people are doing on Forteo.
I am supposed to start this medication this yr. I have been on reclast for 3 yrs. I recently fractured again 1 yr after bc radiation spine t9 t10.
Just nervous about doing this medication after having cancer.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

oopsiedaisy | @oopsiedaisy | May 27 12:30pm

I did about two months of teraparatide (generic Forteo) earlier this year but could not tolerate it (joint pain, bloating, constipation). Many people do fine on it, though.

I did Tymlos for four months before that and had similar side effects but not as severe as Forteo).

I just started on Evenity and had my first shot four days ago. I am glad I had an opportunity to try another anabolic medication because I think they are critical if you've had a fracture and have low T-scores.

REPLY
1 reply
sue417 | @sue417 | May 27 1:03pm
In reply to @oopsiedaisy "I did about two months of teraparatide (generic Forteo) earlier this year but could not tolerate..." + (show)
@oopsiedaisy

I did about two months of teraparatide (generic Forteo) earlier this year but could not tolerate it (joint pain, bloating, constipation). Many people do fine on it, though.

I did Tymlos for four months before that and had similar side effects but not as severe as Forteo).

I just started on Evenity and had my first shot four days ago. I am glad I had an opportunity to try another anabolic medication because I think they are critical if you've had a fracture and have low T-scores.

Jump to this post

Hi
Oh, man.That worries me because I'm so sensitive to medication.And I need this forteo badly. I am in canada so they don't offer tymlos. I cannot take evenity because I had a tia. Hope you can tolerate the evenity

REPLY
1 reply
drsuefowler | @drsuefowler | May 27 6:56pm

I am very sensitive to all medications. Most people can probably tolerate these osteoporosis medications, but I have trouble. I was on a half dose of Tymlos for 9 months, then I saw a new Endo who put me on Forteo. I have now been on it for 6 months. I take it before bed. It didn't really bother me at first, but the last month or so, I have noticed extra pain, especially in my legs, fatigue and brain fog. I just don't have enough energy to accomplish what I need to. I also have trouble sleeping, since I have to urinate 2-3 times a night. There is a diuretic in Forteo. The brain fog is concerning because my mother had Dementia. My Endo PA wanted me to try to take it during the day. I tried it after dinner and just felt extra tired and a little nauseous. I tried it after breakfast and felt sort of sick all day with fatigue and nausea. The yuck feeling lasted 9 hours. So I still take it at bed time. I will ask to go back on half a dose of Tymlos which didn't seem to bother me. I couldn't tolerate any more than half a dose.

REPLY
shhsgirl | @shhsgirl | May 27 11:23pm
In reply to @sue417 "Hi That's great Thks I am feeling better about Forteo With all the great responses." + (show)
@sue417

Hi
That's great
Thks I am feeling better about Forteo With all the great responses.

Jump to this post

Me, too!

REPLY
1 reply
sue417 | @sue417 | May 28 7:01am
In reply to @shhsgirl "Me, too!" + (show)
@shhsgirl

Me, too!

Jump to this post

Hi
Are you going on it too

REPLY
oopsiedaisy | @oopsiedaisy | May 28 8:48am
In reply to @sue417 "Hi Oh, man.That worries me because I'm so sensitive to medication.And I need this forteo badly...." + (show)
@sue417

Hi
Oh, man.That worries me because I'm so sensitive to medication.And I need this forteo badly. I am in canada so they don't offer tymlos. I cannot take evenity because I had a tia. Hope you can tolerate the evenity

Jump to this post

So far, so good. I had my first injection of Evenity last Friday and other than two sore arms where they injected the medication I have had no side effects. Even if I do, I am going to try to stick with it for a year because it’s my last option for an anabolic.

I hope the Forteo works for you. I am not medication sensitive (took Fosamax for over five years without issue) so it was a bit of a surprise. I do have high calcium levels in my urine so I think it’s possible the side effects were due to increased serum calcium.

REPLY
1 reply
cs53 | @cs53 | May 28 11:00am
In reply to @daphne17 "I started on Forteo in 2014 and finished up in 2016. Prior to starting, I had..." + (show)
@daphne17

I started on Forteo in 2014 and finished up in 2016. Prior to starting, I had 2 or 3 thoracic fractures and my bone density was very low. I was nervous about Forteo but it was either continue to loose more density and experience more fractures or try the medication. The only significant side effect I recall was knee pain and possibly some back pain. When I finished up on Forteo, the knee pain went away. Of course the increased bone density starts to subside after you finish up so my Dr. then prescribed Prolia which I still take. I have not had any thoracic fractures since. However, I took a serious tumble about eight years ago which resulted in a fractured femur. Not sure any medication would have prevented that fracture. Before starting Forteo, I did a lot of research and finally decided, with my low bone density and my thoracic fractures (which are so painful and debilitating), I needed to go forward with the Forteo and Prolia and I do not regret it.

Jump to this post

Do you know that Prolia can cause atypical femur fractures. It is a known side effect.

REPLY
1 reply
sue417 | @sue417 | May 28 11:13am
In reply to @oopsiedaisy "So far, so good. I had my first injection of Evenity last Friday and other than..." + (show)
@oopsiedaisy

So far, so good. I had my first injection of Evenity last Friday and other than two sore arms where they injected the medication I have had no side effects. Even if I do, I am going to try to stick with it for a year because it’s my last option for an anabolic.

I hope the Forteo works for you. I am not medication sensitive (took Fosamax for over five years without issue) so it was a bit of a surprise. I do have high calcium levels in my urine so I think it’s possible the side effects were due to increased serum calcium.

Jump to this post

Hi
I wish I could do evenity but I had a tia 6 yrs ago so i don't qualify for evenity. I am in Canada, so the only 2 they offer is evenity or forteo. Tymlos is not approved here yet

REPLY
daphne17 | @daphne17 | May 30 12:55pm
In reply to @cs53 "Do you know that Prolia can cause atypical femur fractures. It is a known side effect." + (show)
@cs53

Do you know that Prolia can cause atypical femur fractures. It is a known side effect.

Jump to this post

Yes, I knew that. This was not as the result of Prolia.

REPLY
View MoreView Less
Please sign in or register to post a reply.