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Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: 19 hours ago | Replies (1147)Comment receiving replies
@ukmalsman hi thank you for your response… I live in Nashville. I have just reached out again today for the second time to my gastroenterologist. Asking that they do a specific ultrasound test for the MALS.
My doctors have all been very ‘sympathetic’… some even calling me at 7-8-9 o’clock at night just to let me know that they have reviewed my tests, are so sorry but they have looked at my films over and over and over and they are dumbfounded and just have no explanation for me. They are always very apologetic. They say they know that something is wrong but they do not see anything on the films showing them a cause for my issues.
Still, all the sympathy in the world doesn’t help me.
Although my PCP has personally witnessed my stomach issues, still he does not know what to do...Except to send me to specialist doctors. And I understand that. At least he does that. My PCP before him had me come back for bloodwork every three months for two years before I finally just broke down and lost my mind in his office and begged him to please not make me come back after three months because I could not handle the pain for three more months before doing just another round of bloodwork.
After that I found another PCP who has at least made the effort to find good specialists for me to see.
But You just think that somewhere at some point somebody would recognize this and know what’s causing it.
Replies to "@ukmalsman hi thank you for your response… I live in Nashville. I have just reached out..."
My situation may be different as for the cause. Bachsmom, did you sustain any injuries before all this happened?
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Hi @bachsmom Keep going and don't give up. there are so many inspiring stories on here where someone has gone through the mill like you, but persevered. I had the same issue, many many years of test and nothing. I began to feel the consultants thought it was in my head, even I questioned myself, but I knew it couldn't be because it was just too painful. I even got to the final stage with the consultants whereby they were going to discharge me back to my primary and have the pain specialist fit a spinal chord stimulator. If I would have agreed I would have never found out I had MALs. I turned down the offer telling them I wanted to exhaust every possible avenue.
I understand your urgency, I would give @dave06351 a message, an earlier post he mentioned he has actually spoken to Dr Hsu from Connecticut and could probably guide you further. Maybe @dave06351 could give us a brief on what Dr Hsu said and an update on his condition.
All the best,
Mark