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TYMLOS FEEDBACK

Osteoporosis & Bone Health | Last Active: 1 day ago | Replies (37)

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@harryboy7

I keep going back and forth with Tymlos and Reclast. They all have potential adverse reactions. I always have been skeptical of medications, which is crazy since I am a retired RN.
I have had many breaks-shattered wrist, broken back, broken elbow, 2compression fractures, and joint replacements.
Should have started meds years ago. I still am so torn.
I am curious, when you said "tymlos was causing your grief," are you meaning having to do daily injections, or grief as in depression?
Thank you so much for sharing your story.

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Replies to "I keep going back and forth with Tymlos and Reclast. They all have potential adverse reactions...."

Oh, gee, @harryboy7, I'm so sorry to hear about all of your frax! I understand your being torn about taking these evil meds, however, I figured it was meds now or a nursing home at an early age and the latter was not for me; I have too much to do!

Tymlos caused me so many issues that I was unable to complete the last 14 months of treatment. Although I had many issues - nausea that was not controlled by meds, 120+ heart rate, severe and unrelenting shoulder and chest pain that was so frightening it caused me to visit the ER twice within a few months, the feeling of walking on a broken ankle, back pain that made it difficult to walk/move, and a few other problems.

Please don't use my issues as a barometer of how Tymlos works as others have taken it and have had great success. The good news is that if Tymlos causes any adverse side effects, once you stop taking the med, it is out of your system quickly - I started to feel better within days. I had no adverse reactions to either Evenity or Reclast. As an aside, the daily Tymlos injections go pretty well once you get the hang of it.

All the best as you navigate through your story - wishing you a happy ending!

Cheers!