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What were the first dementia signs you noticed?

Caregivers: Dementia | Last Active: 3 hours ago | Replies (123)
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@SusanEllen66

@wctdoc1943 thanks for your comment. I’m in about the same place as your wife. I have MCI, my executive function is not functioning, and I have traits of Frontotemporal Dementia.

I have other neurological disorders compounding my situation. Living alone, as I do, can sometimes be disconcerting, but I am working through everything.

One suggestion, your wife might like the Dementia Action Alliance (DAA). I joined several months ago, and have been able to interact with others who have dementia via Zoom meetings. We have fun, and we encourage each other. There’s a Music Zoom that’s basically “name that tune”, an art, and poetry meeting, one titled Faith, Hope, and Love.
Every one of the participants, including the Hosts have dementia.
DAAactionnow.org
I think that is their address. I forgot…

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Replies to "@wctdoc1943 thanks for your comment. I’m in about the same place as your wife. I have..."
wctdoc1943 | @wctdoc1943 | May 28 3:23pm

Thank you so much for your response. You sound wondeerful. And thank you for the info about Dementia Action Alliance. With a little searching, I found the website to be daanow.org and I see there is a wealth of information there.

I am not sure what stage of cognitive loss my wife is in right now. Her diagnosis was 7 or 8 years ago, and though I am sure her impairment has progressed, living with her every day, the changes are very gradual and subtle, but the short term memory loss is certainly worse, and she has almost total loss of ability to go beyond the most basic use of her phone and iPad, and the TV remote frustrates her to no end. But she knows family and friends and can drive a car. The only way she could use the DAA site is with my constatnt help (which I am more than happy to do). Even with written directions, she has difficulty managing the steps, and as soon as she loses her place, she cannot regain it. It is so frustrating for both of us, but I cannot imagine being her.

Again, I thank you for responding and for the helpful information. Best wishes to you and I pray there will be a breakthrough in prevention and/or treatment of this cruel disease. Hugs 🤗🤗🤗

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