How Long Can You Wait From Diagnosis to Mastectomy for IDC?
Three months ago i was diagnosed with DCIS (ductal carcinoma in situ; non-invasive) but then had to have an MRI which showed other areas of enhancement. This was followed by MRI with 3 biopsies which showed other areas of DCIS and a single small area of invasive ductal carcinoma (IDC). There was a lot of time betweeen things due to hematomas and waiting for an opening for the MRI with biopsies. After the IDC diagnosis, I decided to get a 2nd opinion and move from my local hospital/surgeon to a much larger, teaching state hospital 2 hours away. So now I have a new surgery date for a mastectomy, which will make it about 4 months from the original diagnosis. I am scared this is too long for invasive cancer, but they say it is the 1st opening the surgeon has. Has anyone else had this much time lapse between diagnosis and mastectomy?
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Do keeping touch as things move along. June 12 will be here soon, and personally I found the process less stressful once the waiting was over.
I know all situations are different but the doctors know the urgency and perhaps you have a slow growing cancer. What is the grade of your DCIS. Not that I would encourage anyone to do this but I was diagnosed DCIS high grade 3 multi focal and all sorts. As I was taking care of my beloved mum and lost my dad too in the process I just could not do the surgery. I wanted to spend every moment with mum.. I was getting checks in between and they would still show dCis but when I finally had surgery which was April 8 exactly 2 years later from diagnosis I was stage 1. Still considered early stage, no lymph nodes involved and had clear margins.. doing just 4 rounds of chemo due to high oncotype. So as long as they know it's worth waiting for a great surgeon which is also what I did. Also I remember one surgeon saying dCis is usually 90 days from diagnosis that it would need to be taken care of.
Yes you make a good point and i will have to have faith that the surgeon feels the timing is ok. The DCIS was grade 2 but they also found invasive ductal carcinoma, which is what worries me. You were brave to make your decision to spend time with your mom and i am glad it worked out well for you. The surgeon is a top surgeon at the breast center so waiting for her specifically gives me some comfort. thanks for sharing your story.
Do drs even begin to understand the anxiety. Have drs gotten so cold hearted. Surely someone with elective can be bumped for you.
I had a questionable mammo 3.5 weeks ago. 7 days later, 3d mammo and ultrasound. Went right into his office. He owns the mammo machine, biopsy machine. Then 7 days for sterotactic performed by the surgeon. I find out in 10 hrs the result. I am aware of being in very good hands even tho its a smaller city. I dont know what I am facing but I am not sure I could have been as patient or unangry as you? I saw a (female) dr on YT who said she gets the person in ASAP and definitely within a month. 6 weeks if the patient has complications. I'm so sorry this has been made all the more difficult. I don't know what to say. Squeaky wheel???
Wow! I am so touched by your moving story with love, @prc73 ! Thanks for sharing your experience to encourage & inspire us all!
Best wishes to all on the journey ahead!
My journey is just “beginning”—kinda. I actually had a fairly large (small egg) sized lump over a year ago. Had mammo but had to fight 2-3 weeks for sonogram. Was told “nothing to worry about”. I was so relieved as I was already a survivor from over 20 years before. Fast forward to February this year and ER Dr tells me I have endometriosis following chest/pelvic scan for pneumonia! Three months later I finally see ob/Gyn and she casually asks if I am having mammo—so then offers to do breast exam. From moment she touched and felt the lump I saw the concern in her face. Now 3 weeks later I’ve had all kinds of scans and biopsy which I’m told is invasive lobular carcinoma and going to see surgeon next week! Only positive I’ve heard was the chest/pelvic scan says it has not metasticized. Having breast MRI on Monday and see surgeon for consult for mastectomy. The emotions/stress/worry are awful although I was relieved with it not showing signs of spreading. I’m more than angry that a biopsy was not ordered a year ago! Trying to stay upbeat knowing I’m in God’s hands. Hospital in my town is suffering financially and there are no surgeons for me here so have to drive 90 miles for surgeon. Wishing all healing prayers.
Thank you and may the Almighty envelope each and every warrior in this fight for indeed we shall beat this ladies.
Year by year more treatments happen. Breast cancer treatments are so much better. Now the steps we take, and the path is filled with time loss and fear. Take faith in your medical team and love for yourself into every day you have a visit or test. We can and do get to the other side.
thank you for your words of encouragement!