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Pulmonary Arterial Hypertension

Heart & Blood Health | Last Active: May 31 8:53pm | Replies (34)

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Profile picture for marybird @marybird

That's Mark Cuban's pharmacy site, I see. I have never used them, no need to as I have an excellent prescription drug plan and the copays are generally less than I'd pay anywhere else.

You know, I never thought to ask and they didn't tell me whether or not lowering of the observed pulmonary artery pressure with furosemide would be an improvement or just a maintenance of the status quo or slowing of an inevitable progression. I must admit I've just been taking the furosemide, trying to watch my diet and exercise, and avoiding the topic other than that, mostly from denial, I guess.

I keep thinking I can't really have this as any mild symptoms I may have occasionally might have other causes as well. I also have A-fib and the side effects of the metoprolol I take for rate control might also cause some of those symptoms. I'm thinking the cardiologist's approach to this will most likely be conservative, as long as I'm mostly asymptomatic, and that would be my preference. We'll see what the upcoming echo shows, and I'll report back when I get those results, either jumping for joy as the arterial pressure has dropped, or crying because it hasn't and we have to go from there.

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Replies to "That's Mark Cuban's pharmacy site, I see. I have never used them, no need to as..."

I will celebrate or cry with you @marybird .

When I first started reading about this condition I, too, was very depressed and scared in particular since the cardiologist/EP I was seeing for AFib was totally unconcerned about it. I had to self refer to a pulmonologist for follow up on the echo. He assured me I wasn’t “on my death bed” which I feared. He sent me to pulmonary rehab saying I needed some exercise (so true, I’d become afraid to do much of anything) and that has helped, just need to keep it (40 min on treadmill and NuStep)up on my own now. My new cardiologist is the one who agreed I could try sildenafil which I just started. I used GoodRX ($17 for one month supply) since my insurance won’t cover it without a right heart cath for diagnosis. I, too, wonder if this is a cure ( but I read there’s no cure) in that it is supposed to ease/lower the pressure, right? Or can it stop the progression?