Hi Laura
I felt anxious through the whole wait and watch period of 5 years and then even more at the idea of starting these drugs which I did back in Jan 25. I could push the anxiety aside each time I was told we won’t treat yet but now I have joined these support groups the anxiety is much less plus i just ended up saying put on your big girl pants. Do this, so many have good outcomes and you can be one of them. More positive thinking and whatever happens, happens. There is always someone worse off than me! I lost a bit of weight when I started the drugs and I didn’t eat much probably because of the anxiety but now that I am about to start my 5th month of treatment and I’ve accepted there is nothing more I can do but continue until treatment is finished, I have much less anxiety. Acceptance I guess. I had a rough start too with side effects and had to stop ethambutol now on Clofazimine and the thought of those side effects made me anxious again but there are positive experiences from others that again reduce it. If you just get on with life, keep busy, exercise a good walk in a park or at the beach always good to clear the mind. Cook a new recipe, a quiet shopping trip and play music 🎹 music soothes the soul and the mind, have a dance all by yourself, gosh I feel relaxed already just writing this haha. But, seriously remain calm, accept and all will be good! Best wishes to you and all who are on this same journey as us x