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Pulmonary Arterial Hypertension

Heart & Blood Health | Last Active: May 31 8:53pm | Replies (34)

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I'm finding the comments in this thread interesting, as I've been informed I also have pulmonary artery hypertension. I have slight shortness of breath at times on mild exertion, but that could also be due to other reasons, haven't ever seen my pulse ox PO2 levels below 90, and no lung issues I know of, so I wonder how in the world could I have PAH. The first indication of this possible problem was found on several chest CT scans done for cancer surveillance ( I'm in the 5 yr surveillance period post colon cancer) which reported an enlarged pulmonary artery base, and an echocardiogram last year showed a pulmonary artery pressure of 68 mm/Hg. The cardiologist started furosemide ( 20 mg/day), I'm still taking it, it doesn't seem as though things have progressed, thank goodness. I have another echo coming up in about 2 weeks, so we will see if the furosemide helped and where we go from there.
When I saw that diagnosis I read everything I could find about this medical condition, found it so depressing I had to stop. I wondered though, if there were people around who had mild cases of pulmonary hypertension that didn't progress beyond a certain point, how they were treated and was it possible to stay mild or does it always progress. Or do I just have a flaky pulmonary artery with some high pressure and it isn't PAH at all?

They mentioned the sildenafil as one treatment for PH/PAH, so out of curiosity I looked up the costs and the ease of availability of this drug from the pharmacy. It's an older generic drug ( specifically as I read, prescribed as "sildenafil for pulmonary hypertension") so it shouldn't be that much with insurance, but it looks like it depends on the insurance, the pharmacy and I see it requires prior authorization by some plans and other plans don't cover it at all. Just for the heck of it, I looked up the cost of this drug ( sildenafil for pulmonary hypertension) with Good Rx, and seemed as though this drug might cost a lot less using Good Rx without insurance. Hopefully I won't need the drug, but I thought the information might be useful to someone else who does.

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Replies to "I'm finding the comments in this thread interesting, as I've been informed I also have pulmonary..."

Along the drug conversation @marybird and @dalewhit I looked up sildenafil and found two inexpensive generic options at https://www.costplusdrugs.com/ . Have you ever ordered from them?

Marybird, I imagine it will be a relief to get a follow-up echo in a couple of weeks. I hope you report back. Did you doctor say if “furosemide success” would be improvement or trying to keep it from getting worse?

Furosemide is a diuretic- I wonder why you were given that for PH? Were you retaining fluids badly? The sildenafil is supposed to dialate the pulmonary arteries which would be what we want to happen I think.