Connect
← Return to Camptocormia (bent spine syndrome or BSS): Looking for others
Discussion
Camptocormia (bent spine syndrome or BSS): Looking for others
Spine Health | Last Active: Aug 28 6:41am | Replies (154)Comment receiving replies
I really appreciate your post, @laurie386. It shows how important it is to advocate for yourself and keep looking for answers. I understand what you mean about, "Naming an affliction actually is comforting." I have similar feelings. Even if there is not a cure for a health issue, having a label helps you to understand what is going on and how you can best cope with the problem.
You said that you are involved in group exercise. I'm wondering if there is a specific type of physical therapy that has been suggested?
Replies to "I really appreciate your post, @laurie386. It shows how important it is to advocate for yourself..."
Connect
I do have a physical therapist who really has no knowledge beyond what I have provided for her through emailing her articles that I was given by my Utah doctor. She does support my exercising and provides me with input about how I exercise based on her knowledge from her usual clients and education. Personal experience for my particular BSS has been working to build up the secondary muscles to provide some support. I was told that the atrophied muscles won't rebuild much. As I said, I work out my entire muscles sets (there are 9) through body pump, cardio sculpt (much like jazzercise or aerobics with the addition of light hand weights and yoga-style classes. I would be interested in finding a doctor who had real knowledge about Camptocormia (BSS) and help me discover if mine is caused by something other than what has been considered.