This comment resonated with me. It is exactly how I feel...

."Will language for and about us evolve? To the point of being able to explain anything? How do YOU tell people you can't get together because you have NO idea how you'll feel that day? That a shower and dressing to be seen is too much? And no thank you, company, even if they offer to bring lunch, is too much."

You nailed it. I am 70 and have been struggling for almost two years. I may have to give up my intense volunteer work as Vice Chair of a County Political Party (that supports long covid research) I still have hope but it is honestly fading....