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Pulmonary Arterial Hypertension

Heart & Blood Health | Last Active: May 31 8:53pm | Replies (34)

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Profile picture for carculmer @carculmer

Wow, that is a big difference in pressure levels! I'm surprised that with pressure of 28 they are prescribing sildenafil. I thought anything under 40 was considered "normal?" I had an Afib ablation last February and now am on no meds for that (knock on wood) except Xarelto. I was on amioderone for 7 months prior ablation which I have wondered made my PH worse! Have been treated since 2017 for Afib which was intermittent. No one I've seen since the echo findings of PH has suggested it could be from having Afib although I always attributed my breathlessness from Afib even tho I didn't have it all the time. During the last year it got more frequent despite being on fleccainide thus the ablation recommendation. You can drive yourself nuts trying to figure out why you have PH.

Did drs say knee surgery is now not possible for you because of the PH? I had several hours of anesthesia during the ablation with no issues. Where do you live? (I'm in Iowa). It's interesting the difference in medical opinions on this condition. Keep thinking I should go to a specialty center such as Mayo to get a second opinion.

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Replies to "Wow, that is a big difference in pressure levels! I'm surprised that with pressure of 28..."

Pulmonologist thought it should be treated aggressively because it was so mild. Doc is young, smart, and related. She did the RHC and cleared me for knee surgery. Both knees bad. I may have eventually but my afib now more often tachycardia is a problem. One thing at a time. All my care with Mass General/Brigham and Women. Can you get a consult at Mayo?
I live in burb of Boston.
Have had 2 ablations and am considering a third. The advent of AI has made ablations shorter and more effective. I am ambivalent as first two not successful. If third fails I am faced with AV Node ablation which makes you entirely dependent on a pacemaker for your heart beat. Oh My!!!