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DiscussionIdiopathic Polyneuropathy: Do you have fatigue?
Neuropathy | Last Active: 2 hours ago | Replies (18)Comment receiving replies
Replies to "@db72 Do you know the cause of your neuropathy? Have you been tested for small fiber..."
Mine is classified as idiopathic because they did every test in the book including nerve conduction studies, autoimmune studies. Monoclonal antibodies, brain scans, vitamin/iron, the whole nine yards. I’ve had Hashimoto’s for decades but it’s well managed. I have severe large fiber axonal damage. I believe my nerve damage began 40 years ago when I was struck a severe case of Epstein Bar Virus. I never recovered and it turned into ME/CFS (Chronic Fatigue Syndrome). I’ve been disabled my whole adult life. The nerve damage began literally overnight when I first got sick. But the numbness and progression started about 20 yrs ago. I’m not well enough to go out for physical therapy but there are balance exercises online I do when I’m up to it.