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Difference in scores between DEXA and REMS

Osteoporosis & Bone Health | Last Active: Feb 12 9:05pm | Replies (46)

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Profile picture for lnl @lnl

Same story here.
My DEXA scans consistently reported in the -1s for spine, which I was so pleased with since my hips were consistently in the -2.8 range. Then I get a REMS, which reported the same -2.8 range for my hips but -3.3 for my spine! What the DEXA had been measuring seems to be calcification, not bone density.
So, what to do. Some people may recognize my screen name as someone who has weighed in on my very lousy Tymlos experience. Endo has now recommended Evenity, but I'm too scared to try it. I feel great-- and am terrified I'll be one of the horror stories. Still taking Actonel, which does something for me, but not a whole lot.

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Replies to "Same story here. My DEXA scans consistently reported in the -1s for spine, which I was..."

I had a bad experience with Tymlos as well but had to follow up with something post lumbar fusion. I’ve been on Evenity now for 7 mos and I’ve had minimal side effects . I’ve had some increased joint pain and at the beginning, occasional nausea and one instance of vertigo. With Tymlos similar side effects were much more frequent and more severe. A recent Dexa indicated significant improvement in my spine though some of that could be the bone growth material the surgeon added in. I’ve lowered my expectations with these meds.