Connect
← Return to Hashimoto's Disease
Discussion
Comment receiving replies
@fionalauren
I feel for you and know how you feel. Before surgery, I noticed difficulty swallowing and speaking which improved after surgery. Before surgery, my TSH was within normal range but after lobectomy, I started to feel like a zombie and could not get out of bed. I felt so sick and extremely exhausted. My TSH peaked about 4.5-5 and even though within the “normal” range, I felt anything but normal.
Do you know what your TSH level was when you felt better and before surgery? My TSH at or below 1.0 is my “normal.” I’m wondering if your negative reactions was not necessarily from levothyroxine and more due to the hypothyroidism post surgery. You may want to try levothyroxine again at lower dosage and gradually build up until your TSH lands within your “normal” range. They started me at 88 mcg after surgery and then increased to 100 mcg. What dosage did they prescribe for you after surgery?
Replies to "@fionalauren I feel for you and know how you feel. Before surgery, I noticed difficulty swallowing..."
Connect
Hi, thanks for this. I was put onto the lowest levothyroxine dose of 25mcg post surgery. my TSH at it’s highest was around 8, but it normalised over time without meds. I don’t know what it was pre surgery but will look into that. either way, I am now at TSH of 3.5 and am not functioning. I also have Hashimotos which may explain many of the symptoms as inflammation can cause havoc on the body. The levothyroxine was definitely not right for me and sent me to ER with feeling like I was having a heart attack - I have read of others having similar experience.I am very medicine sensitive. Unsure if I should try NP Thyroid which is a natural desiccated hormone combo T3 + T4, which endocrinologists do not prescribe. I have been advised by functional medicine doctors a compound T3 + T4 would be a better route but at this stage after a year of such terrifying symptoms and no seeming clear answer I do not trust any doctors.