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Pulmonary Arterial Hypertension

Heart & Blood Health | Last Active: 1 day ago | Replies (31)

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@dalewhit

We have similar issues!
Weak knees, mild sleep apnea, mild pulmonary hypertension. Climbing stairs very difficult and again, don’t know if it’s knees or breathing. I was due to have knee surgery when PH discovered so put off knees probably indefinitely.
I also have a fib which docs think caused pulmonary hypertension.
Echo was high pressure - 71. RHC was 28.

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Replies to "We have similar issues! Weak knees, mild sleep apnea, mild pulmonary hypertension. Climbing stairs very difficult..."

Wow, that is a big difference in pressure levels! I'm surprised that with pressure of 28 they are prescribing sildenafil. I thought anything under 40 was considered "normal?" I had an Afib ablation last February and now am on no meds for that (knock on wood) except Xarelto. I was on amioderone for 7 months prior ablation which I have wondered made my PH worse! Have been treated since 2017 for Afib which was intermittent. No one I've seen since the echo findings of PH has suggested it could be from having Afib although I always attributed my breathlessness from Afib even tho I didn't have it all the time. During the last year it got more frequent despite being on fleccainide thus the ablation recommendation. You can drive yourself nuts trying to figure out why you have PH.

Did drs say knee surgery is now not possible for you because of the PH? I had several hours of anesthesia during the ablation with no issues. Where do you live? (I'm in Iowa). It's interesting the difference in medical opinions on this condition. Keep thinking I should go to a specialty center such as Mayo to get a second opinion.