Nerve Bliss '
I want to try this suppliment. Listened to the whole thing. New rearch found cause of neuropathy different from what has been thought. Endosed by highly respected universities & presented by a neuro doctor, who formerly had neuropathy. Sounds reasonable.
Anyone try it?
@4suses2
Neuropathy has so many causes so I don’t believe anyone can honestly make claims that they identified the cause.
You mentioned doctors etc who back up their claim.
Please investigate whether these professionals have any connection to the manufacturer. Are they making a profit on the sales?
That happens more times than not.
Please don’t waste your money. There is no cure for neuropathy.
I’ve had it for 10 years. The cause is an autoimmune disease called Cutaneous Polyarteritis Nodosa.
It’s incurable too.
When I try to use a stationary bike or a treadmill or elliptical, in 2 minutes my legs are getting numb and it it affects my balance. For this reason I am not able to have even a normal stress test EKG.
I was diagnosed first with Lumbar stenosis about 10 years ago and afterwards with Type II Diabetes.
To add to neuropathy my 15 years Meniere's disease causes sporadic dizziness episodes.
I fell several times, just based on balance problems and neuropathy caused weakness.
Went trough multiple tests with Neurogists, ENT, cariologists, endocrinologists. Tests helped to identify the problems, but have not helped to make my life easier.
Currently I rely on Physical Therapy, exercises and being very cautious walking . Up and down the curb, stairs, bending, streching are way beyond my limits.
I deeply appreciate you sharing your ways in fighting periferal neuropathy and balance problems.
Hello Rachel, Increasing I am losing the ability to walk without the use of a walker. I go to physical therapy but it doesn't seem to help. My neurologist doesn't seem very knowledgable about peripheral neuropathy. I don't know what to expect in the future. I wish I could help you.
@4suses2
Neuropathy has so many causes so I don’t believe anyone can honestly make claims that they identified the cause.
You mentioned doctors etc who back up their claim.
Please investigate whether these professionals have any connection to the manufacturer. Are they making a profit on the sales?
That happens more times than not.
Please don’t waste your money. There is no cure for neuropathy.
I’ve had it for 10 years. The cause is an autoimmune disease called Cutaneous Polyarteritis Nodosa.
It’s incurable too.
@SusanEllen66 - I have looked up your theory that idiopathic neuropathy is caused by Cutaneous Polyarteritis Nodosa (CPN) and it seems unlikely. Reading about the base condition here: https://en.wikipedia.org/wiki/Polyarteritis_nodosa it says that this disease is fatal within 5 years and luckily that does not apply to people on this forum! Please elaborate on where you read that there is a Cutaneous (skin) version of this disease. Give us a link please.
@rachel44
How long ago were you diagnosed? What testing and treatments did you get by your neurologist? Are you on any medications or supplements now?
Have you had a MRI of your brain and cervical spine? Any compression of your spinal cord/nerve roots and nerves can can affect your balance and walking, etc. You may also benefit from seeing an orthopedic spine specialist to review imaging and symptoms.
I do have peripheral neuropathy and I have a balance problem. Working with a chiropractor for the first time and my x-ray show that I have scoliosis in my spine, which is causing me to have a bad balance along with my feet and legs always aching. I tried cheer yoga, and I developed too much pain in my legs. I guess I was really pushing it. I started using a cane when I take a walk and that has helped my balance. As others have said, staying active is the most important thing. At this point, I’m trying to find the right shoe for my issues
I do have peripheral neuropathy and I have a balance problem. Working with a chiropractor for the first time and my x-ray show that I have scoliosis in my spine, which is causing me to have a bad balance along with my feet and legs always aching. I tried cheer yoga, and I developed too much pain in my legs. I guess I was really pushing it. I started using a cane when I take a walk and that has helped my balance. As others have said, staying active is the most important thing. At this point, I’m trying to find the right shoe for my issues
@tbfay
Hoka brand shoes are a little expensive but are known to help people who have balance and sides and neuropathy. They have a wider base which helps with balance.
You need to see a neuromuscular neurologist and a neuromuscular physical therapist. Neuromuscular helps with muscles and neurological disorders. I learned this from Dr Anne Oaklander in Boston. She also practices in other states. My neuropathy is autoimmune. I have balance issues and dizziness. I was put on IVIG Panzyga. It has helped a lot. I have lupus Hashimotos Sjogrens and connective tissue disorder.
I do have peripheral neuropathy and I have a balance problem. Working with a chiropractor for the first time and my x-ray show that I have scoliosis in my spine, which is causing me to have a bad balance along with my feet and legs always aching. I tried cheer yoga, and I developed too much pain in my legs. I guess I was really pushing it. I started using a cane when I take a walk and that has helped my balance. As others have said, staying active is the most important thing. At this point, I’m trying to find the right shoe for my issues
I saw a neurologist about two years ago who really helped me he gave me quite a series of test including a brain wave and a brain scan told me I have peripheral neurology and nothing else but I do have. He said part of a brain on the bottom right lacked oxygen at some point in time which probably contributes to my balance problem
Mine was also diagnosed idiopathic, I do not have diabetes.
The other thing they found in me is my B12 levels were deficient. This can cause neuropathy symptoms as well. If you are vegan it's easier to deplete your levels and levels go down as you age. I am neither so that diagnosis is also idiopathic. But I do have extensive gut problems which I assume stems from.
I take once a month B12 injection now. I'm still on gabapentin for my PN though.
Great that u r finding the importance of B12.
Google informed me that our stomachs hold less acid with age.
Acid works on animal proteins to release B12. With insufficient we make less blood cells and get very tired. Alcohol reduces B12 uptake.
The easiest absorbed is METHYLCOBALAMIN.
That's the proper name for B12.
I have trigeminal neuralgia. I take B12 daily in the hope that it will regrow the nerves myelin.
It's called COBALAMIN because one soil bacteria only lives in COBALT soils. Grazing animals pull up some B12 containing soil with grass. We eat their meat to get B12. Interesting stuff.
82 yr old James. Bye.
ALA is in a supplement, “ Nerve Bliss” I just bought and not sure if I made the right decision. Has anyone heard of it? In addition it has B1, B12, B9, CA poppy, zinc and D3. Basic claim that enzyme MMP13 is the culprit eroding nerve’s myelin sheath and is inhibited by the B s that get delivered in ice cold water. Desperation can lead to “ why not try” decisions before checking with communities like this one.
I found 1000 micrograms METHYLCOBALAMIN nightly stopped my trigeminal neuralgia pain in teeth and gums rt side.
You are on the rt track with ALA.
Now only taking 100 micrograms.
Also turmeric with black pepper.
@SusanEllen66 - I have looked up your theory that idiopathic neuropathy is caused by Cutaneous Polyarteritis Nodosa (CPN) and it seems unlikely. Reading about the base condition here: https://en.wikipedia.org/wiki/Polyarteritis_nodosa it says that this disease is fatal within 5 years and luckily that does not apply to people on this forum! Please elaborate on where you read that there is a Cutaneous (skin) version of this disease. Give us a link please.
@crossette CPAN inflames the arteries. When the arteries become inflamed, they swell and prevent blood/oxygen to get where it needs to go.
My nerves were deprived of the necessary oxygen, and became damaged.
You are asking where I read about CPAN. I didn’t have to read about. I was diagnosed with it in 2016. The diagnosis was confirmed by both the dermatologists at Mayo Clinic, and the USC Medical Center. It is rare.
The National Library of Medicine’s site,
PMC PubMed Central has info.
The NORD (National Organization for Rare Disorders)
rarediseases.org
dermnetznz.org
I hope I’ve given you the info you are looking for.
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@4suses2
Neuropathy has so many causes so I don’t believe anyone can honestly make claims that they identified the cause.
You mentioned doctors etc who back up their claim.
Please investigate whether these professionals have any connection to the manufacturer. Are they making a profit on the sales?
That happens more times than not.
Please don’t waste your money. There is no cure for neuropathy.
I’ve had it for 10 years. The cause is an autoimmune disease called Cutaneous Polyarteritis Nodosa.
It’s incurable too.
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2 ReactionsHello Rachel, Increasing I am losing the ability to walk without the use of a walker. I go to physical therapy but it doesn't seem to help. My neurologist doesn't seem very knowledgable about peripheral neuropathy. I don't know what to expect in the future. I wish I could help you.
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Helpful -
Hug
2 Reactions@SusanEllen66 - I have looked up your theory that idiopathic neuropathy is caused by Cutaneous Polyarteritis Nodosa (CPN) and it seems unlikely. Reading about the base condition here: https://en.wikipedia.org/wiki/Polyarteritis_nodosa it says that this disease is fatal within 5 years and luckily that does not apply to people on this forum! Please elaborate on where you read that there is a Cutaneous (skin) version of this disease. Give us a link please.
I do have peripheral neuropathy and I have a balance problem. Working with a chiropractor for the first time and my x-ray show that I have scoliosis in my spine, which is causing me to have a bad balance along with my feet and legs always aching. I tried cheer yoga, and I developed too much pain in my legs. I guess I was really pushing it. I started using a cane when I take a walk and that has helped my balance. As others have said, staying active is the most important thing. At this point, I’m trying to find the right shoe for my issues
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Like -
Helpful -
Hug
2 Reactions@tbfay
Hoka brand shoes are a little expensive but are known to help people who have balance and sides and neuropathy. They have a wider base which helps with balance.
-
Like -
Helpful -
Hug
1 ReactionYou need to see a neuromuscular neurologist and a neuromuscular physical therapist. Neuromuscular helps with muscles and neurological disorders. I learned this from Dr Anne Oaklander in Boston. She also practices in other states. My neuropathy is autoimmune. I have balance issues and dizziness. I was put on IVIG Panzyga. It has helped a lot. I have lupus Hashimotos Sjogrens and connective tissue disorder.
-
Like -
Helpful -
Hug
1 ReactionI saw a neurologist about two years ago who really helped me he gave me quite a series of test including a brain wave and a brain scan told me I have peripheral neurology and nothing else but I do have. He said part of a brain on the bottom right lacked oxygen at some point in time which probably contributes to my balance problem
-
Like -
Helpful -
Hug
1 ReactionGreat that u r finding the importance of B12.
Google informed me that our stomachs hold less acid with age.
Acid works on animal proteins to release B12. With insufficient we make less blood cells and get very tired. Alcohol reduces B12 uptake.
The easiest absorbed is METHYLCOBALAMIN.
That's the proper name for B12.
I have trigeminal neuralgia. I take B12 daily in the hope that it will regrow the nerves myelin.
It's called COBALAMIN because one soil bacteria only lives in COBALT soils. Grazing animals pull up some B12 containing soil with grass. We eat their meat to get B12. Interesting stuff.
82 yr old James. Bye.
-
Like -
Helpful -
Hug
1 ReactionI found 1000 micrograms METHYLCOBALAMIN nightly stopped my trigeminal neuralgia pain in teeth and gums rt side.
You are on the rt track with ALA.
Now only taking 100 micrograms.
Also turmeric with black pepper.
@crossette CPAN inflames the arteries. When the arteries become inflamed, they swell and prevent blood/oxygen to get where it needs to go.
My nerves were deprived of the necessary oxygen, and became damaged.
You are asking where I read about CPAN. I didn’t have to read about. I was diagnosed with it in 2016. The diagnosis was confirmed by both the dermatologists at Mayo Clinic, and the USC Medical Center. It is rare.
The National Library of Medicine’s site,
PMC PubMed Central has info.
The NORD (National Organization for Rare Disorders)
rarediseases.org
dermnetznz.org
I hope I’ve given you the info you are looking for.
-
Like -
Helpful -
Hug
2 Reactions