← Return to Median Arcuate Ligament Syndrome (MALS)

Discussion

Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: 11 hours ago | Replies (1229)

Comment receiving replies
@kanaazpereira

I'm so glad to know that you're progressing well, @annief; welcome to Connect. I'm certain @kariulrich @jmmb @pfpurple @tclarkkkk and others in this incredibly informative group will join in with their thoughts as well.

Would you share more about how you are managing your diet? Do you have any restrictions, or are you able to include everything in your diet? Has your doctor suggested any next steps?

Jump to this post


Replies to "I'm so glad to know that you're progressing well, @annief; welcome to Connect. I'm certain @kariulrich..."

Well after I posted, I’ve had a rough couple of days. I’m guessing I ate too much at a meal or the wrong thing. I’ve been feeling just like I did before they found a blood clot, stomach pain nausea. I think I just have to figure out how to eat with this condition and be vigilant. So you asked about my diet, I’m still figuring that out. Any suggestions Are welcome. Also which doctor manages this condition, the gastroenterologist or the vascular doctor? My primary care was the one that admitted me to the hospital and began running all the test. If it were not for her, I think I would still be wondering what’s wrong with me. I am over 50 so no one is rushing to do surgery because it’s not guaranteed it will work. The Doppler ultrasound sounds like it would be beneficial. Maybe I will consult another doctor and see what they say.

Consult another doctor- and a third if needed. I was also told there was no guarantee. I made the decision to go through with the surgery. My pain was bad. It was a university hospital and the surgeon did mostly GI surgery. He admitted to only having done 5 in his very long career. All went well. Needed a stent placed later to keep it open.
I used to have small meals, I still do.

@annief How are you doing??? Feeling any better? Did smaller meals work? I eat small meals 8-10 times a day... so basically snacking all day. I always eat a carb with a fruit, then carb with a vegetable, carb with protein... mostly crackers or chocolate seem to be working well for me. I also take multi vit. I do not drink with food. So I drink water or tea through out the day. I have recently started drinking a red bull energy drink (the one with sugar) because my energy levels get so low around 11-12pm... it can make your pulse go up if your not use to the caffeine. ( The caffeine has really cut back on my headaches).